The nurse uttered words no mother should ever hear. Her words haunted me - for a long time. Until The Patchwork Bear came into our life. (I received a memory bear from The Patchwork Bear in return for my honest review. This is 100% my opinion.) I keep rubbing my hands over the brown fuzzy bear View Post
4 Ways Narcolepsy Has Made Me a Better Parent
As a parent with narcolepsy, I am constantly balancing taking care of myself and caring for others, and rarely have enough energy and time to do both... Parents are always tired, right? We are constantly walking around on the brink of sleep deprivation, especially when babies are young. If there View Post
How to Find the Best Pediatric Specialist for Your Child
Another Test, Another "-Ologist" I look at my watch, again. It has been seven minutes since he left the exam room to look at my baby’s blood work results. Seven minutes is a “blink of an eye” when I’m laying in bed after the alarm goes off. But when you are waiting to hear the results from your View Post
Life Lessons to be Learned From a Make-A-Wish Trip
"We didn’t want to simply accept the Make-A-Wish gesture, go on our trip and chalk it up as a great summer." The kids were about to learn life lessons. This post is sponsored by Basic Invite. I received customized cards and other compensation in return for my honest opinion and review. His View Post
The Special Needs Family’s Guide to LEGOLAND
You have a child with special needs, your day is filled with medical jargon and concerns. “Vacation” means something very different to you than it does to your friends. You travel with luggage no family should ever have to tote around, but after years of doing it - you are a pro. You manage the View Post
Staying Authentic When Parenting Gets REAL!
Have you ever had to be so REAL with your child that it hurt? - Like you were punched in the gut?! Well, today I managed to stay authentic when parenting got real, it was down-right raw! It was a normal afternoon after school pickup. The kids’ mouths didn’t stand still for a minute. They were View Post
10 Things Other Parents Need to Know About ADHD in Girls
I am excited to share this article with you about ADHD in girls. The ten questions featured in this series of "10 Things Other Parents Need to Know About..." are answered by a mother with ADHD about her young daughter, also with ADHD. This is incredibly insightful, empowering and educational. Please View Post
10 Things Other Parents Need to Know About Childhood Apraxia of Speech
Today I am sharing this heartfelt post from Alexandria about her almost 4 year old son Ian. I know her information will empower and educate someone else in the same situation! The rest of this is her writing! Since he was about 18 months old we have had him enrolled in early intervention classes View Post
10 Things Other Parents Need to Know About Type 1 Juvenile Diabetes
I am SO honored to have my friend Megan share her experience with Type 1 Juvenile Diabetes. Her beautiful daughter, Maeve was diagnosed several years ago when she was just a toddler. Megan and Maeve have done an incredible job spreading awareness and educating others of the devastating disease. View Post
10 Things Other Parents Need to Know About Hypoplastic Left Heart Syndrome (HLHS)
I met Caelen's mom several years ago before she moved to Florida. We connected in a Facebook group for heart moms, because that's what heart moms do - they connect, instantly. Caelen was born with Hypoplastic Left Heart Syndrome ("HLHS"), which means that the left side of his heart is severely View Post
10 Things Other Parents Need to Know About Minimal Change and Hashimoto’s
Hunting for a diagnosis is frustrating and all-consuming for parents who have children with medical conditions. Often parents "know" that there is something wrong with their child, but finding the right medical professional or specialist to listen can seem impossible. Thankfully this mom, a friend View Post
10 Things Other Parents Need to Know About FPIES
This week a good friend of mine is helping other parents with children diagnosed with FPIES. FPIES stands for Food Protein Induced Enterocolitis Syndrome. I met this mom a few years ago when her son was newly diagnosed. I was blown away at the journey she had been on to finally get a diagnosis. Now View Post
10 Things Other Parents Need to Know About Epilepsy
I am kicking off this new series featuring a dear friend who answered my questions regarding her son’s epilepsy. Epilepsy is a catch-all term used for disorders and medical conditions causing recurrent seizures. This broad diagnosis is often frustrating to parents with a newly diagnosed child. View Post
10 Things Other Parents Need to Know About…
I am thrilled to introduce a new blog series called “Ten Things Other Parents Need to Know About…” Each blog post will feature a complex medical condition and a parent with an affected child will answer ten questions. These posts will be an invaluable resource to other parents with newly diagnosed View Post