I am thrilled to introduce a new blog series called “Ten Things Other Parents Need to Know About…” Each blog post will feature a complex medical condition and a parent with an affected child will answer ten questions. These posts will be an invaluable resource to other parents with newly diagnosed children.
Of the ten questions answered, you will learn where to find support, which specialists to see, which symptoms were a surprise and learn how other families adjust to their “new normal”.
The ten things other parents to know about:
1 In hindsight, my child’s symptoms were:
2 The specialist who helped us the most:
3 The specialist we didn’t expect to need:
4 It took us this long to get a diagnosis:
5 The biggest financial expense because of this medical condition is:
6 The organizations that helped us:
7 I wish my friends and relatives knew:
8 Our ray of hope:
9 Our biggest cheerleaders and supporters:
10 I wish I had known:
Please contact me if you wish to participate in the series. You can remain anonymous, or I will gladly link to your blog (if you are a blogger). Even if a medical condition has been covered by another family, please reach out to me, no two journeys are the same. You can message me on Facebook, Twitter or email me directly at firstname.lastname@example.org if you wish to participate in this series. I would LOVE to have you!
As always, please remember that none of the information on this blog is meant diagnose medical conditions or take the place of a consultation with a medical professional. It IS however meant to offer support – lots of support.
I also wish to empower and encourage parents to listen to the little voice inside. Following intuition and continuing to seek answers when an initial diagnosis doesn’t make sense has saved lives more times than you can imagine. Ask questions, learn as much as you can and then find that ONE medical professional who will be your quarterback.
Please contact me ASAP if you want to answer the 10 questions, spots are filling quickly!
Don’t miss any of the other articles in this series. We address a multitude of medical conditions.