To say that the heart-mom community is a “village of support” is a gross understatement. We are a group of kindred hearts, a force to be reckoned with and a united front when it comes to welcoming new members and teaching newbie heart moms the ropes. We seek the truth and demand untampered transparency of patient outcomes in order to make the best decisions of treatment and medical care for our families. We encourage each other to fight for answers, to talk the talk and to listen to our internal voices when things don’t “feel right.”
I don’t write about my son’s particular diagnosis or condition for privacy reasons, but I do share openly and intimately about the experience of being a “medical mom”. Over the past week I was contacted by two of my best heart-mommy friends, asking if I would share their written words. They trusted me to spread their message far and wide – and I am beyond honored and proud to be the bull horn for “medical parents”.
The following is a letter written by a Canadian heart mom. She wanted to remain anonymous, but no longer silent – and I love her bravery!
[bctt tweet=”She wanted to remain anonymous, but no longer silent – she is a true #HeartMom !”]
To the staff treating my medically-complex child,
My child has been in this world much longer than you expected, thus I’ve been in this relationship with you much longer than I expected. If I could break up with you and find someone new, believe me I would (I’m sure so would you some days). But that isn’t possible; we’re in a dysfunctional relationship. If we recognize this together and just come to an agreement in this open-forum on a few things, maybe we can better understand and appreciate and trust each other again. First though, I want to thank you for being in your chosen profession and trying to help people like us explore this uncharted life. Even though I’m angry, distrustful and frustrated, I appreciate you, and I’m glad you’re in our lives. So… here are my thoughts on how we can agree to be in a healthier relationship: (Click here to read the rest published at “The Mighty”).
Share with me in the comments: which “community” is your “village”?